The Utah Population Database (UPDB) is a rich source of information for genetic, epidemiological, demographic, and public health studies. For more than 30 years, researchers have used this resource to identify and study families that have higher than normal incidents of cancer or other diseases, to analyze patterns of genetic inheritance , and to identify specific genetic mutations. In addition, demographic studies have shown trends in fertility transition and changes in mortality patterns for both infants and adults.

The UPDB is the only database of its kind in the United States and one of few such resources in the world. The central component of the UPDB is an extensive set of Utah family histories, in which family members are linked to demographic and medical information. The UPDB includes diagnostic records about cancer, cause of death, and medical details associated with births. It also includes claims data from statewide inpatient hospital discharge records. The UPDB provides access to information on more than 7.1 million individuals and supports more than 95 research projects. This information can only be used for biomedical and health-related research; the privacy of individuals represented in these records and confidentiality of the data is strictly protected.

Support for the UPDB is provided by the Pedigree and Population Resource (PPR), which is directed by Geraldine Mineau, PhD. The Utah Resource for Genetic and Epidemiologic Research (RGE) and an Institutional Review Board (IRB) administer access to files through a review process.

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