The Utah Population Database (UPDB) is a rich source of information for genetic, epidemiological, demographic, and public health studies. For over 30 years, researchers have used this resource to identify and study families that have higher than normal incidents of cancer or other diseases, to analyze patterns of genetic inheritance and to identify specific genetic mutations. In addition, demographic studies have shown trends in the fertility transition and changes in mortality patterns for both infants and adults.

The UPDB is the only such database of its kind in the United States and one of few such resources in the world. The central component of the UPDB is an extensive set of Utah family histories, in which family members are linked to demographic and medical information. The UPDB includes diagnostic records on cancer, cause of death, and medical details associated with births. It also includes claims data from statewide inpatient hospital discharge records. The UPDB provides access to information on over 6.5 million individuals and supports more than 75 research projects. These data can only be used for biomedical and health-related research; the privacy of individuals represented in these records and confidentiality of the data is strictly protected.

Support for the UPDB is provided by the Pedigree and Population Resource (PPR), which is directed by Geraldine Mineau, PhD. The Utah Resource for Genetic and Epidemiology Research (RGE) and an Internal Review Board (IRB) administer access to files through a review process.

The privacy of individuals represented in these records and confidentiality of the data is strictly protected.

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